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Neuroendocrine Tumor Research Foundation

EIN 20-1945347 · Quincy, MA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong96 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO FUND RESEARCH TO DISCOVER CURES AND MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NETRF IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEUROENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.

Income
$8.7 million
Spending
$4.8 million
Spent on programs
83%
Reserves
13.2 months of spending
Largest source of income
donations and private grants, 91%
Employees
7
Volunteers
14
Highest pay
$212,863, chief executive officer

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 96 out of 100. Higher than 81% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 13.2 months of spending.

  • Debt

    16 of 20

    It owes 18% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 45% of income.

  • Income trend

    15 of 15

    Income rose 117% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs and raising each dollar of donations cost 7 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    12 of 12 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $3.5 million spent. THE NEUROENDOCRINE TUMOR RESEARCH FOUNDATION FUNDS SCIENTIFIC RESEARCH AROUND THE WORLD TO DISCOVER THE CAUSES, IMPROVE TREATMENTS, AND FIND CURES FOR NEUROENDOCRINE CANCER.
  2. $404,871 spent. NETRF PROVIDES EDUCATION AND SUPPORT FOR PEOPLE WITH NEUROENDOCRINE CANCER AND THEIR FAMILIES. THROUGH EDUCATIONAL CONFERENCES, A PATIENT GUIDE, PODCASTS AND A COMPREHENSIVE WEBSITE, NETRF HELPS PATIENTS UNDERSTAND THEIR DIAGNOSIS AND TREATMENT OPTIONS.
  3. $83,478 spent. NETRF CONDUCTS OUTREACH TO OTHER NET-RELATED ORGANIZATIONS IN THE UNITED STATES AND BEYOND TO CONVENE RESEARCHERS AND FACILITATE SCIENTIFIC COLLABORATION. THROUGH ITS WORK AND LEADERSHIP WITH THESE OTHER GROUPS, NETRF ADVANCES UNDERSTANDING OF NEUROENDOCRINE TUMORS AND THE NEEDS OF NET PATIENTS. NETRF ALSO WORKS WITH PATIENT SUPPORT GROUPS TO CONNECT TO THE LARGER NET COMMUNITY.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2005.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.