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The Iga Nephropathy Foundation of America Inc

EIN 20-1155709 · Wall Township, NJ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood79 out of 100GovernanceFair65 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT.

Income
$2.6 million
Spending
$2.2 million
Spent on programs
78%
Reserves
11.3 months of spending
Largest source of income
donations and private grants, 97%
Employees
10
Volunteers
100
Highest pay
$168,546, executive director

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 79 out of 100. Higher than 43% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 11.3 months of spending.

  • Debt

    16 of 20

    It owes 20% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 14% of income.

  • Income trend

    5 of 15

    Income fell 16% on the year before.

  • Spending floor

    15 of 15

    78% of spending went to programs and raising each dollar of donations cost 3 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 65 out of 100. Higher than 13% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    12 of 12 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $488,775 spent. CONFERENCES AND MEETINGSSPARK IS A TWO-DAY IN-PERSON ANNUAL PATIENT CONFERENCE ATTENDED BY PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK.
  2. $1.1 million spent. EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID.PROFRAMS INCLUDE : AAPI INITATIVES, IGAN AWARENESS DAY, PATIENT ENGAGEMENT PROGRAMS, MONTHLY SUPPORT PROGRAMS, PODCASTS AND WEBINARS.
  3. $100,000 spent. RESEARCH GRANTS ARE PROVIDED TO COLUMBIA UNIVERSITY.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since October 2010.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.