Copd Foundation Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE COPD FOUNDATION WAS ESTABLISHED TO IMPROVE THE LIVES OF PEOPLE WITH COPD, BRONCHIECTASIS, AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE THROUGH INITIATIVES THAT EXPAND SERVICES AND SPEED INNOVATIONS WHICH WILL MAKE TREATMENT MORE EFFECTIVE AND AFFORDABLE.WE DO THIS THROUGH SCIENTIFIC RESEARCH, EDUCATION, ADVOCACY, AND AWARENESS WITH THE GOAL OF DISEASE PREVENTION, SLOWED PROGRESSION, AND ULTIMATELY A CURE.
- Income
- $14.4 million
- Spending
- $12.6 million
- Spent on programs
- 71%
- Reserves
- 2.6 months of spending
- Largest source of income
- donations and private grants, 94%
- Employees
- 46
- Volunteers
- 337
- Highest pay
- $324,799, chief executive officer
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Fair: 65 out of 100. Higher than 42% of charities in its peer group (diseases, $10m to $100m).
Reserves
10 of 35Spendable reserves would cover 2.6 months of spending.
Debt
10 of 20It owes 41% of what it owns.
Living within its means
15 of 15Income exceeded spending by 12% of income.
Income trend
15 of 15Income rose 31% on the year before.
Spending floor
15 of 1571% of spending went to programs and raising each dollar of donations cost 7 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 37% of charities in its peer group (diseases, $10m to $100m).
Independent board
25 of 2518 of 18 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (5)
- $3.3 million spent. RESEARCH & MEDICALTHE COPD FOUNDATION RESEARCH TEAM ENGAGES WITH MULTIPLE INDIVIDUALS AND ORGANIZATIONS TO SUPPORT RESEARCH STUDIES AND CLINICAL TRIALS. THESE STUDIES FOCUS ON A WIDE RANGE OF TOPICS THAT ALIGN WITH THE FOUNDATION MISSION. THESE INCLUDE PATIENT SYMPTOM TREATMENT, VIRTUAL COPD MANAGEMENT TOOLS, PATIENT FEEDBACK ON SCREENING TOOLS, AND DEVELOPMENT OF NEW THERAPIES AND MEDICAL DEVICES TO ADDRESS UNMET NEEDS. THE COPD FOUNDATION RESEARCH TEAM ALSO PARTICIPATED IN SEVERAL ACTIVITIES THAT ARE TARGETING PEOPLE WITH EARLY COPD WITH THE AIM TO DEVELOP APPROACHES THAT CAN BE USED TO SLOW DISEASE PROGRESSION THESE INCLUDE AN AMERICAN THORACIC SOCIETY EARLY DISEASE WORKING GROUP, CO-CHAIRED BY THE COPD FOUNDATION AND DISCUSSIONS RELATED TO THE DESIGN AND CONDUCT OF CLINICAL TRIALS IN PATIENTS WITH EARLY DISEASE.THE COPD FOUNDATION IS CONTINUING THE WORK OF THE PATIENT INSPIRED VALIDATION OF OUTCOME TOOLS (PIVOT) PROJECT. PIVOT WAS ESTABLISHED TO BE A DRIVING FORCE FOR INTEGRATING THE PATIENT AND THE PATIENT VOICE INTO CLINICAL OUTCOME MEASUREMENT VALIDATION AND SELECTION FOR USE IN CHRONIC LUNG DISEASE RESEARCH AND CLINICAL TRIALS. THE PIVOT PROJECT HAS PRODUCED TWO MANUSCRIPTS, ONE TO DESCRIBE THE OBJECTIVES OF PIVOT AND A SECOND REPORTING THE FIRST RESULTS OF ANALYSIS OF WHAT MATTERS MOST TO PATIENTS WITH COPD. OVER THE NEXT YEAR THE PIVOT TEAM WILL CONDUCT A SURVEY OF COPD PATIENTS TO BETTER UNDERSTAND THE HETEROGENEITY IN HOW COPD PATIENTS EXPERIENCE THEIR DISEASE IN THEIR DAILY LIVES AND WHAT IS MOST IMPORTANT TO THEM IN TERMS OF UNMET NEEDS. IN THE COMING YEAR, THE PIVOT TEAM WILL ALSO BEGIN SIMILAR WORK IN NON-CYSTIC FIBROSIS BRONCHIECTASIS.THE COPD FOUNDATION CONTINUES TO PRIORITIZE THE DEVELOPMENT OF ITS PATIENT POWERED RESEARCH NETWORK OR PPRN, A NETWORK IN WHICH PATIENTS ARE RECRUITED TO SHARE THEIR HEALTH INFORMATION AND DISEASE IMPACT. PATIENT PROVIDED HEALTH INFORMATION IS STORED IN A SECURE DATABASE AND IS USED TO SUPPORT PROJECTS WHERE PATIENT INPUT IS NEEDED. THE PPRN IS CURRENTLY BEING USED TO SUPPORT MULTIPLE ONGOING RESEARCH STUDIES AND CLINICAL TRIAL ACTIVITIES.
- $3.7 million spent. BRONCHIECTASIS & NTM ASSOCIATIONTHE COPD FOUNDATION WAS APPROVED TO DO BUSINESS AS THE BRONCHIECTASIS AND NTM ASSOCIATION. WITH THIS APPROVAL, WE EMBARKED ON A REBRANDING EFFORT, ENSURING OUR COMMITMENT AND DEDICATION TO THIS PATIENT COMMUNITY.WE HAD ANOTHER SUCCESSFUL WORLD BRONCHIECTASIS DAY CAMPAIGN, REACHING OVER 2 MILLION PEOPLE. THE CAMPAIGN ALLOWED US TO BRING TOGETHER NEARLY 20 PATIENT ADVOCACY ORGANIZATIONS AND PROFESSIONAL SOCIETIES TO COLLABORATE IN SPREADING AWARENESS AND EDUCATION ON BRONCHIECTASIS.THE GOAL OF THE BRONCHIECTASIS AND NTM RESEARCH REGISTRY IS TO SUPPORT COLLABORATIVE RESEARCH AND ASSIST IN THE PLANNING OF MULTI-CENTER CLINICAL TRIALS FOR THE TREATMENT OF NON-CF BRONCHIECTASIS AND/OR NTM LUNG DISEASE. OVER THE COURSE OF THE YEAR, THE REGISTRY CONTINUED ENROLLING AND COLLECTING LONGITUDINAL DATA ON PARTICIPANTS, REACHING OVER 8,000 PARTICIPANTS AND UP TO 16 YEARS OF DATA ON SOME PARTICIPANTS. SEVERAL REGISTRY ABSTRACTS WERE PRESENTED AT INTERNATIONAL CONFERENCES AND MANUSCRIPTS WERE PUBLISHED AS A RESULT OF THE REGISTRY DATA COLLECTION. IN ADDITION, THE REGISTRY WAS UTILIZED TO FACILITATE RECRUITMENT INTO MAJOR CLINICAL TRIALS IN THIS SPACE.THE BRONCHIECTASIS AND NTM CARE CENTER NETWORK'S MISSION IS TO REDUCE THE TIME TO DIAGNOSIS AND SUPPORT HIGH QUALITY CARE FOR THIS PATIENT POPULATION. THE CARE CENTER NETWORK SUCCESSFULLY ONBOARDED 33 CENTERS AND CONTINUED PLANNING FOR THE NEXT REQUEST FOR APPLICATIONS.
- $714,987 spent. COMMUNITYTHE COPD360 COMMUNITY ENGAGEMENT COMMITTEE (COPD360CENCO), A DIVERSE PATIENTS AND CAREGIVERS COMMITTEE, CONTINUED TO MEET MONTHLY TO PROVIDE THE VOICE OF PATIENTS AND CAREGIVERS TO ALL THE COPD FOUNDATION'S EFFORTS, AND TO SUPPORT ITS INTERACTIONS WITH OTHER HEALTH CARE AND ADVOCACY ORGANIZATIONS. PATIENT AND CAREGIVER INVOLVEMENT IN GOVERNANCE AND EDUCATION IS THE MODEL ON WHICH THE COPD FOUNDATION WAS ESTABLISHED. WITH THAT CENTRAL GOAL, THE COPD FOUNDATION HAS BUILT TRUST WITHIN ITS MEMBERSHIP AND RELATED STAKEHOLDER GROUPS.MEMBERSHIP IN THE COPD FOUNDATION CAPTAINS PROGRAM GREW BY 13%. CAPTAINS SPREAD COPD AWARENESS IN THEIR STATE AND LOCAL AREAS, MENTOR FELLOW COPD COMMUNITY MEMBERS, AND PARTICIPATE IN GRASSROOTS ADVOCACY AND COMMUNITY BUILDING ACTIVITIES FOCUSED ON HEALTH POLICY ISSUES THAT ARE IMPORTANT TO THOSE WHO HAVE COPD AND OTHER CHRONIC LUNG DISEASES. THE COPD FOUNDATION CONTINUES TO SUPPORT PATIENT WELLBEING BY PROVIDING FREE MONTHLY SUPPORT GROUPS FOR PATIENTS AND CAREGIVERS. SUPPORT GROUPS ARE AVAILABLE FOR BOTH PATIENTS WITH COPD AND PATIENTS WITH BRONCHIECTASIS AND (NONTUBERCULOUS MYCOBACTERIAL) NTM LUNG DISEASE. HUNDREDS OF PATIENTS ATTEND THESE MEETINGS EACH MONTH TO DISCUSS THEIR EXPERIENCES AND LEARN ABOUT TOPICS SUCH AS STAYING HEALTHY DURING THE HOLIDAYS AND TALKING TO THEIR HEALTH CARE PROVIDERS ABOUT THEIR SPECIFIC ISSUES AND SYMPTOMS.
- $666,485 spent. PUBLIC & PROFESSIONAL EDUCATIONTHE COPD FOUNDATION CONTINUES TO ENSURE HIGH-QUALITY EVIDENCE-BASED EDUCATIONAL MATERIALS ARE AVAILABLE FOR INTERNAL AND EXTERNAL STAKEHOLDERS. THE COPD FOUNDATION PODCAST RELEASED 12 EPISODES IN 2025, PROVIDING INSIGHTS FROM KEY OPINION LEADERS (KOLS) ON TOPICS RELATED TO COPD CARE. TWO NEW PATIENT-FACING 101 DECKS, ONE FOCUSING ON INTRODUCING COPD, AND THE OTHER DISCUSSING GENETIC COPD. TWO NEW LANDING PAGES WERE ALSO DEVELOPED - ONE ON SEVERE COPD THAT PROVIDES GUIDANCE ON MANAGEMENT, AND THE OTHER ON GENETIC COPD, WHICH ENCOURAGES TESTING FOR THE GENETIC CONDITION. TO SUPPORT PEOPLE LIVING WITH COPD IN A GROUP SETTING, RESOURCES TO SUPPORT GROUPS IN PROVIDING EFFECTIVE PEER SUPPORT AND EDUCATION WERE CREATED AND PROVIDED TO SEVERAL COMMUNITIES IN RURAL AREAS ACROSS THE COUNTRY. TO HELP IMPROVE THE DIAGNOSIS OF COPD IN RURAL COMMUNITIES, COPD SCREENING AND COPD EDUCATION WERE CONDUCTED AT NUMEROUS EVENTS IN FOUR STATES IN THE APPALACHIAN REGION. A MEDIA AND DIRECT MAIL CAMPAIGN PROMOTED COPD AWARENESS, AND THE USE OF PULMONARY REHABILITATION IN THESE AREAS, AND THREE PULMONARY REHABILITATION PROGRAMS IN THESE REGIONS WERE PROVIDED WITH FREE EDUCATIONAL MATERIALS.THE COPD FOUNDATION ALSO DEMONSTRATES A COMMITMENT TO PROVIDING HIGH-QUALITY EDUCATION FOR HEALTH CARE PROVIDERS WHO CARE FOR PEOPLE WITH CHRONIC LUNG DISEASE. SEVERAL CONTINUING MEDICAL EDUCATION PROGRAMS OR ACCREDITED PROGRAMS WERE PROVIDED FOR PROFESSIONAL DEVELOPMENT. THE LUNG HEALTH COLLABORATIVE WAS DEVELOPED AS A COMMUNITY OF PROVIDERS COMMITTED TO PROVIDING EFFECTIVE CARE FOR PEOPLE WITH CHRONIC LUNG DISEASE. THIS GROUP HAS AN ONLINE FORUM FOR COLLABORATION AND A DEDICATED NEWSLETTER. THE INAUGURAL LUNG HEALTH COLLABORATIVE VIRTUAL ASSEMBLY PROVIDED A FULL DAY OF EDUCATIONAL SESSIONS FOR HEALTH PROFESSIONALS. THESE SESSIONS WERE HELD BY KOLS AND DISCUSSED NOVEL COMPONENTS OF COPD CARE.
- $664,875 spent. ADVOCACY & PUBLIC POLICYTHE COPD FOUNDATION COMMUNITY WORKS WITH LOCAL, STATE, AND FEDERAL POLICY MAKERS TO INCREASE RESEARCH FUNDING, IMPROVE CARE DELIVERY, PROTECT ACCESS TO TREATMENTS, AND CREATE POLICY THAT IMPROVES THE LIVES OF THOSE WITH COPD, BRONCHIECTASIS AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE. THE COPD FOUNDATION CENTERED ITS FY25 POLICY EFFORTS ON THE FOLLOWING PRIORITIES:1. INCREASING RESEARCH FUNDING2. ADVANCING PATIENT-CENTERED TREATMENT APPROVALS3. IMPROVING ACCESS TO OXYGEN THERAPY4. EXPANDING PULMONARY REHABILITATION5. REDUCING TOBACCO AND NICOTINE USEPROGRESS HAS BEEN MADE ON ALL POLICY PRIORITIES AS A DIRECT RESULT OF COPD FOUNDATION ADVOCACY EFFORTS. THIS INCLUDES THE PROGRESSION OF PULMONARY REHABILITATION AND SUPPLEMENTAL OXYGEN LEGISLATION THROUGH CONGRESS AND THE SUBMISSION OF OVER 100 BUDGET REQUESTS TO LEGISLATIVE OFFICES FOR THE FY26 APPROPRIATIONS CYCLE. OVER 75 ADVOCATES JOINED THE COPD FOUNDATION IN WASHINGTON, D.C. TO ADVOCATE FOR CRITICAL LUNG HEALTH POLICIES DURING THE IMPACT LUNG HEALTH 2025 LEGISLATIVE ADVOCACY CAMPAIGN, REPRESENTING 52 SENATE DISTRICTS, 53 HOUSE DISTRICTS, AND 26 STATES.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since October 2005.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Could it be confused with another charity? Worth knowing.
A much larger organization has a similar name: Chg Foundation (Chula Vista, CA), EIN 33-0586911. If that is the one you meant, check the EIN before giving.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
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