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Chicago Center for Jewish Genetic Disorders

EIN 20-0120266 · Chicago, IL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood75 out of 100GovernanceStrong95 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE NORTON & ELAINE SARNOFF CENTER FOR JEWISH GENETICS (THE CENTER) IS AN EDUCATIONAL RESOURCE FOR HEREDITARY CANCERS AND JEWISH GENETIC DISORDERS. WORKING CLOSELY WITH CLERGY, HEALTH CARE PROFESSIONALS, SUPPORT ORGANIZATIONS AND DEDICATED INDIVIDUALS, THE CENTER STRIVES TO INFORM COMMUNITY MEMBERS AND RAISE AWARENESS OF AVAILABLE OPTIONS, INCLUDING ITS OWN SUBSIDIZED GENETIC COUNSELING AND SCREENING PROGRAM, SO THEY CAN PLAN FOR A HEALTHY FUTURE.

Income
$515,327
Spending
$641,561
Spent on programs
86%
Reserves
19.5 months of spending
Largest source of income
donations and private grants, 73%
Employees
0
Volunteers
35
Highest pay
$365,057, assistant treasurer

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 75 out of 100. Higher than 44% of charities in its peer group (health care, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 19.5 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 24% of income.

  • Income trend

    5 of 15

    Income fell 12% on the year before.

  • Spending floor

    15 of 15

    86% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 95 out of 100. Higher than 84% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    16 of 16 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $549,519 spent. WE TRANSLATE LABORATORY DISCOVERIES INTO ACCESSIBLE INFORMATION FOR THE JEWISH COMMUNITY, HEALTH CARE PROVIDERS, RABBIS AND THE GENERAL PUBLIC WHILE STRIVING TO RAISE AWARENESS THROUGH EDUCATION, SCREENING AND PREVENTION PROGRAMS, AN INFORMATION AND REFERRAL HELP LINE, AND ADVOCACY. GOALS AND OBJECTIVES WE SERVE: -THE PUBLIC AND JEWISH COMMUNITY -PHYSICIANS -HEALTH PROFESSIONALS -RABBIS OUR GOALS TO PROVIDE: -COMMUNITY EDUCATION AND AWARENESS -PROFESSIONAL EDUCATION -SCREENING AND PREVENTION PROGRAMS -INFORMATION AND REFERRAL -ADVOCACY OUR OBJECTIVES: -CREATE OUTREACH PROGRAMS TO COMMUNITY MEMBERS AND RABBIS -DEVELOP EDUCATIONAL PROGRAMS FOR PHYSICIANS, HEALTH PROFESSIONALS & STUDENTS -BECOME A CLEARINGHOUSE FOR A FULL RANGE OF SERVICES -PROVIDE INFORMATION ON CURRENT RESEARCH AND TREATMENT -WORK WITH OTHER ORGANIZATIONS IN CHICAGO AND AROUND THE WORLD -FACILITATE EXCHANGE OF INFORMATION NATIONALLY AND INTERNATIONALLY -INCORPORATE ETHICAL ISSUES FROM WITHIN THE JEWISH COMMUNITY -INFORM PUBLIC POLICY FOR IMPROVING HEALTH CARE

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 2003.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

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