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National Association of Councils on Developmental Disabilities

EIN 16-1646154 · Washington, DC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak33 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO PROVIDE NATIONAL LEADERSHIP PROMOTING THE INTERESTS OF PEOPLE WITH DEVELOPMENTAL DISABILITIES AND THEIR FAMILIES, AND SERVE AS THE UNITED VOICE RESPRESNTING COUNCILS ON DEVELOPMENTAL DISABILITIES.

Income
$2.1 million
Spending
$2.2 million
Spent on programs
53%
Reserves
0.6 months of spending
Largest source of income
government grants, 66%
Employees
0
Volunteers
17
Highest pay
$215,000, executive director/ceo

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 33 out of 100. Higher than 4% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    4 of 35

    Spendable reserves would cover 0.6 months of spending.

  • Debt

    2 of 20

    It owes 90% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 6% of income.

  • Income trend

    15 of 15

    Income rose 5% on the year before.

  • Spending floor

    8 of 15

    53% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    13 of 13 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $543,023 spent. TECHNICAL ASSISTANCE: NACDD PROVIDED TECHNICAL ASSISTANCE TO STATE COUNCILS ON DEVELOPMENTAL DISABILITIES. EACH COUNCIL DETERMINED ITS OWN NEEDS, AND CONSEQUENTLY, THE TYPES AND DURATION OF THE ASSISTANCE VARIED FROM COUNCIL TO COUNCIL. NACDD ALSO PROVIDED TELEPHONE ADVICE TO COUNCILS ON COMPLIANCE AND MANAGEMENT ISSUES. TECHNICAL ASSISTANCE IS FUNDED BY A CONTRACT FROM THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES, DEPARTMENT OF HEALTH AND HUMAN SERVICES.
  2. $81,511 spent. COUNCIL SERVICES: SERVED THE NEEDS OF COUNCILS BY ASSISTING THEM WITH THEIR INTERNAL OPERATIONS AND STATE SYSTEMS ISSUES ANNUAL SUMMER CONFERENCES PRODUCED COUNCIL SERVICES NEWSLETTER MAINTAINED THE NACDD WEB PAGE PROVIDED ONSITE, INSERVICE TRAINING FOR COUNCIL ORIENTATION AND OTHER PROGRAMMATIC NEEDS AND CONDUCTED SPECIAL PROJECTS.
  3. $532,737 spent. BRIDGING AGING AND DISABILITY NETWORKS: THE NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES, IN PARTNERSHIP WITH THE INSTITUTE ON DISABILITY AND HUMAN DEVELOPMENT AT THE UNIVERSITY OF ILLINOIS CHICAGO, LURIE INSTITUTE FOR DISABILITY POLICY AT BRANDEIS UNIVERSITY, THE ARC, AND NATIONAL ASSOCIATION OF AREA AGENCIES ON AGING, SEEKS TO STRENGTHEN THE COLLABORATION BETWEEN AGING AND DISABILITY NETWORKS TO BETTER SUPPORT INDIVIDUALS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES (I/DD) AND THEIR FAMILIES IN FUTURE PLANNING. WE WILL LEVERAGE OUR COLLECTIVE EXPERTISE IN AGING, DISABILITY, AND FUTURE PLANNING TO: 1) BUILD CAPACITY ACROSS AND WITHIN STATES' AGING AND DISABILITY NETWORKS TO PROVIDE COORDINATED SERVICES AND SUPPORTS THAT ADDRESS THE NEEDS OF AGING ADULTS WITH I/DD AND THEIR FAMILIES AS THEY PLAN FOR FUTURE CARE AND 2) SUPPORT, SUSTAIN, AND REPLICATE EMERGING AND PROMISING PRACTICES AND POLICIES IN STATES THAT SUPPORT THE UNIQUE NEEDS AND PREFERENCE OF ADULTS AGING WITH I/DD AND THEIR FAMILIES TO AID THEM IN PLANNING FOR THE FUTURE. BECAUSE OF THIS PROJECT: 1) STATES WILL HAVE A MORE ESTABLISHED, CULTURALLY COMPETENT INFRASTRUCTURE THAT ADDRESSES FUTURE PLANNING AND MORE EFFECTIVELY RESPONDS TO THE UNIQUE NEEDS OF DIVERSE FAMILIES 2) OLDER ADULTS WITH I/DD WILL BE LIVING IN THE COMMUNITY WITH SUPPORTS THAT REFLECT THEIR NEEDS, WANTS, AND CULTURAL PREFERENCES AND 3) MORE POLICIES WILL BE CHANGED TO ENABLE MORE COORDINATED ACCESS ACROSS AGING AND DISABILITY NETWORKS THAT IMPROVES THE EXPERIENCE OF PEOPLE WITH I/DD AND THEIR FAMILIES AS THEY AGE. NEW RESOURCES WILL INCLUDE A WEBSITE, PROMISING PRACTICES REPORT, AND ADDITIONAL MATERIALS IN PLAIN LANGUAGE AND OTHER LANGUAGES, AS DETERMINED BY STATES' NEEDS WITH INPUT FROM A PARTNERSHIP COUNCIL.
  4. $21,016 spent. PUBLIC POLICY: REPRESENTED THE INTERESTS OF DEVELOPMENTAL DISABILITIES COUNCILS AND PEOPLE WITH DEVELOPMENTAL DISABILITIES AT THE FEDERAL LEVEL, WITH CONGRESS AND THE ADMINISTRATION KEPT COUNCILS INFORMED ABOUT NATIONAL POLICIES THAT AFFECT THEM AND THEIR CONSTITUENTS, AND ENSURED THE CONTINUATION AND ENFORCEMENT OF THE DEVELOPMENTAL DISABILITIES ACT.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending September 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2006.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.