Mary M Gooley Hemophilia Center Inc
Public records show a registered, tax-exempt organization in good standing.
Points to look into
- Raising each dollar of donations cost 66 cents.
These come from the organization's own tax return. There may be a good explanation; ask the charity.
What it says it does
TO PROVIDE EDUCATION, TREATMENT, RESEARCH, ADVOCACY AND SUPPORTIVE PROGRAMS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY BLEEDING DISORDERS AND IRON OVERLOAD.
- Income
- $28.7 million
- Spending
- $21.5 million
- Spent on programs
- 97%
- Reserves
- 18 months of spending
- Largest source of income
- fees for its services, 94%
- Employees
- 10
- Volunteers
- 14
- Highest pay
- $228,416, president & ceo
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 85 out of 100.
Reserves
35 of 35Spendable reserves would cover 18.0 months of spending.
Debt
20 of 20It owes 9% of what it owns.
Living within its means
15 of 15Income exceeded spending by 25% of income.
Income trend
15 of 15Income rose 13% on the year before.
Spending floor
0 of 1597% of spending went to programs and raising each dollar of donations cost 66 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100.
Independent board
25 of 257 of 7 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $20.4 million spent. THE CENTER HAS APPROXIMATELY 366 BLEEDING DISORDER PATIENTS ON ITS ACTIVE CASELOAD. IN 2024, 231 UNIQUE PATIENTS WITH HEMOPHILIA, VON WILLEBRAND DISEASE AND OTHER RARE CLOTTING DEFICIENCIES WERE EVALUATED AND TREATED. 66 PATIENTS WITH MODERATE AND SEVERE HEMOPHILIA ATTEND SPECIALIZED COMPREHENSIVE CARE CLINICS AT LEAST ONCE EACH YEAR, RECEIVING CONSULTATION FROM AN ONSITE HEMATOLOGIST, NURSE COORDINATOR, SOCIAL WORKER, PHYSICAL THERAPIST, ORTHOPEDIC SURGEON AND DENTIST. THE CENTER HAS AN ON-SITE SPECIALTY PHARMACY THAT PROVIDES CLOTTING FACTOR TO 52 HEMOPHILIA PATIENTS VIA OUR HOME INFUSION PROGRAM.
- $314,047 spent. THE CENTER PROVIDES SPECIALIZED EVALUATION AND CARE FOR PATIENTS WITH HEREDITARY HEMOCHROMATOSIS AND IRON OVERLOAD. TYPICALLY, PATIENTS WITH THESE CONDITIONS RECEIVE REGULAR THERAPEUTIC PHLEBOTOMIES TO DIMINISH EXCESS IRON STORED IN THEIR BODIES, DIMINISHING RISK OF PERMANENT ORGAN DAMAGE. THE CENTER SERVES APPROXIMATELY 213 HEMOCHROMATOSIS/IOD PATIENTS.
- $72,743 spent. THE CENTER HAS BEEN ACTIVELY INVOLVED IN RESEARCH AND CLINICAL TRIALS IN AN EFFORT TO CULTIVATE ADVANCES IN HEMOPHILIA, VON WILLEBRAND DISEASE AND HEMOCHROMATOSIS. IN 2024, THE CENTER PARTICIPATED IN 2 OPEN RESEARCH STUDIES ADDRESSING A WIDE RANGE OF CLINICAL AREAS AND OUTCOMES. IN ADDITION, THE CENTER WORKS CLOSELY WITH THE CENTER FOR DISEASE CONTROL (CDC) AND THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) REGISTRIES, COLLECTING DATA AS PART OF A NATIONAL EFFORT TO BETTER UNDERSTAND AND CARE FOR RARE BLEEDING DISORDERS.
- $81,858 spent. REVENUES AND EXPENSES FOR NATIONAL HEMOPHILIA FOUNDATION CHAPTER ACTIVITIES.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since May 1983.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.