Skip to the page content
Your donations
Passes our checks

Hemophilia Association of New York Inc

EIN 13-5650955 · New York, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair63 out of 100GovernanceStrong97 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.

Income
$441,005
Spending
$960,241
Spent on programs
65%
Reserves
26 months of spending
Largest source of income
donations and private grants, 87%
Employees
6
Volunteers
15
Highest pay
$202,702, executive director-thru 12/31/24

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 63 out of 100. Higher than 23% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 26.0 months of spending.

  • Debt

    20 of 20

    It owes 5% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 118% of income.

  • Income trend

    0 of 15

    Income fell 81% on the year before.

  • Spending floor

    8 of 15

    65% of spending went to programs and raising each dollar of donations cost 6 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 97 out of 100. Higher than 86% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    15 of 15 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    12 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $619,716 spent. MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC FAMILIES BASED ON NEED. DURING 2024-2025, 65% OF STAFF TIME/EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2024-2025, 1013 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 13% OF PATIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $40,226. GROUP MEETINGS AND PATIENTS EVENTS WERE CONDUCTED THROUGHOUT THE YEAR. (CONTINUED ON SCHEDULE O)HIGHLIGHTS INCLUDE A TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A WOMEN'S RETREAT.
  2. $2,126 spent. THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS ASSOCIATED WITH HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2024-2025, THE ASSOCIATION MADE $986 IN PAYMENTS TOWARD THE RESEARCH GRANT AWARDED IN FY 2022-2023.
  3. $1,797 spent. IN FISCAL YEAR 2024-2025, THE ASSOCATION SUPPORTED BLEEDNG DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since February 1954.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.