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ALS United Greater New York Inc

EIN 13-3616680 · New York, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood80 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO SUPPORT & EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCING NATIONAL AND STATE ADVOCACY, & PROVIDING COMPREHENSIVE CARE TO INDIVIDUALS & FAMILIES AFFECTED BY ALS.

Income
$4.5 million
Spending
$5.1 million
Spent on programs
84%
Reserves
12 months of spending
Largest source of income
donations and private grants, 100%
Employees
28
Volunteers
150
Highest pay
$229,698, president & ceo

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 80 out of 100.

  • Reserves

    35 of 35

    Spendable reserves would cover 12.0 months of spending.

  • Debt

    16 of 20

    It owes 23% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 13% of income.

  • Income trend

    10 of 15

    Income fell 8% on the year before.

  • Spending floor

    15 of 15

    84% of spending went to programs and raising each dollar of donations cost 8 cents.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100.

  • Independent board

    25 of 25

    18 of 18 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $3.2 million spent. CARE SERVICES: ALS UNITED GREATER NEW YORK PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, LOWER AND MID-HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ORGANIZATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.
  2. $412,408 spent. RESEARCH: ALS UNITED GREATER NEW YORK HAS FUNDED CLOSE TO $17 MILLION IN ALS-SPECIFIC RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE ORGANIZATION IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.
  3. $361,929 spent. PUBLIC AWARENESS AND EDUCATION: ALS UNITED GREATER NEW YORK WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ORGANIZATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ORGANIZATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 63,000 VIEWERS VISIT OUR WEBSITE ANNUALLY TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, X AND LINKEDIN REACH 18,500 FOLLOWERS.
  4. $272,293 spent. ADVOCACY: ALS UNITED GREATER NEW YORK WORKS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS IN ORDER TO DRIVE THEM TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ORGANIZATION HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ORGANIZATION CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIRECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending January 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.