Sjogrens Foundation Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH.
- Income
- $5.3 million
- Spending
- $4.2 million
- Spent on programs
- 84%
- Reserves
- 8.3 months of spending
- Largest source of income
- donations and private grants, 89%
- Employees
- 16
- Volunteers
- 684
- Highest pay
- $368,360, president and ceo
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 89 out of 100. Higher than 65% of charities in its peer group (diseases, $1m to $10m).
Reserves
28 of 35Spendable reserves would cover 8.3 months of spending.
Debt
16 of 20It owes 23% of what it owns.
Living within its means
15 of 15Income exceeded spending by 20% of income.
Income trend
15 of 15Income rose 51% on the year before.
Spending floor
15 of 1584% of spending went to programs and raising each dollar of donations cost 10 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).
Independent board
25 of 2517 of 17 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $1.2 million spent. THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN JUNE 2025. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF UTAH FOR DEVELOPMENT OF INTERNATIONAL CLASSIFICATION CRITERIA FOR CHILDREN WITH SJOGREN'S DISEASE. THE FOUNDATION PAID THE THIRD PAYMENT TO SUPPORT THE FOUNDATION FOR THE NIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND OTHER AUTOIMMUNE DISEASES, AND THE FIRST PAYMENT OF THE NEW FOUNDATION FOR THE NIH SJOGREN'S BIOMARKERS CONSORTIUM PROJECT TO DISCOVER NEW BIOMARKERS FOR SJOGREN'S TO AID IN IMPROVED DIAGNOSIS AND TREATMENT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGING PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET.
- $254,954 spent. NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
- $1.2 million spent. THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2025 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH THROUGH STATE OF SJOGREN'S AND THE FOUNDATION'S CME PROGRAM AS WELL AS PARTNERING WITH EXTERNAL CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS TO HIGHLIGHT THE IMPORTANCE OF CONTINUED AUTOIMMUNE DISEASE RESEARCH FUNDING, ESPECIALLY FOR SJOGREN'S AND TO HIGHLIGHT THE IMPORTANCE OF SUPPORTING THE OFFICE OF AUTOIMMUNE DISEASE RESEARCH. WE SUCCEEDED IN GETTING A NEW HOUSE RESOLUTION #245 TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED MESSAGING ABOUT THE NEED FOR MORE RESEARCH AND WE HELD OUR FIRST CONGRESSIONAL BRIEFING ON SJOGREN'S. THE FOUNDATION ALSO CONTINUED OUR DIALOG WITH CENTERS FOR MEDICARE AND MEDICAID FOR DENTAL COVERAGE. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. IN JUNE 2025, THE FOUNDATION WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY CONFIRMED BY THE PUBLICATION OF THE INITIATIVE IN A PEER-REVIEWED PUBLICATION NATURE REVIEWS RHEUMATOLOGY.
- $851,838 spent. OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS; PATIENT MEMBERSHIP AND SUPPORT PROGRAMS FOR PEOPLE LIVING WITH SJOGREN'S; HEALTHCARE PROVIDER EDUCATION SUCH AS CREATING CLINICAL PRACTICE GUIDELINES AND ABSTRACTS, PARTNERING WITH EXTERNAL CME PROVIDERS TO CREATE SJOGREN'S COURSES, AND PRESENTING AT PROFESSIONAL CONFERENCES; INDUSTRY SUPPORT AND CO-AUTHORSHIP ON ABSTRACTS TO ENSURE ACCURATE UNDERSTANDING OF SJOGREN'S AND THE NEED FOR EARLY PATIENT INVOLVEMENT IN RESEARCH AND ENCOURAGING FURTHER DEVELOPMENT OF SJOGREN'S THERAPIES FOR ALL PATIENTS.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since May 1986.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
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