Skip to the page content
Your donations
Passes our checks

ALS United Rhode Island

EIN 05-0460482 · Warwick, RI

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood74 out of 100GovernanceStrong91 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

PUBLIC AWARENESS OF ALS DISEASE AND PATIENT AND FAMILY SUPPORT

Income
$422,201
Spending
$476,935
Spent on programs
76%
Reserves
15.7 months of spending
Largest source of income
donations and private grants, 72%
Employees
8
Volunteers
125
Highest pay
$95,000, executive director

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 74 out of 100. Higher than 42% of charities in its peer group (health care, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 15.7 months of spending.

  • Debt

    20 of 20

    It owes 7% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 13% of income.

  • Income trend

    0 of 15

    Income fell 50% on the year before.

  • Spending floor

    15 of 15

    76% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 91 out of 100. Higher than 72% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    6 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $267,558 spent. ALS UNITED RHODE ISLAND REACHED MORE THAN 300 PATIENTS AND PATIENTS FAMILIES THROUGH INFORMATION AND REFERRALS, HOME VISITS, SUPPORT GROUPS AS WELL AS PROVIDING EQUIPMENT LOANS, HANDICAPPED TRANSPORTION AND RESPITE CARE AT NO COST TO THE PATIENT. ALS UNITED RHODE ISLAND ALSO FUNDS AN ALS SPECIFIC MULTI-DISCIPLINARY MEDICAL CLINIC THAT PROVIDES THE SERVICES IN THE AREA OF NEUROLOGY, PULMONOLOGY, PHYISICAL, OCCUPATIONAL AND SPEECH THERAPY AND NUTRITION IN ONE LOCATION.
  2. $93,456 spent. THERE ARE NUMEROUS PROGRAMS THAT SUPPORT PROFESSIONAL AND PUBLIC AWARENESS OUTREACH. ALS AWARENESS DAY IS HELD ANNUALLY AT THE RHODE ISLAND STATE HOUSE DURING MAY. WHILE THIS PROGRAM IS ATTENDED BY OUR CONSTITUENTS, THERE IS ALSO A GREATER OUTREACH TO ANY MEMBERS OF THE GENERAL PUBLIC THAT ARE AT THE STATE HOUSE ON THAT DAY. THE ANNUAL ALS SYMPOSIUM INCLUDES SPEAKERS WHO PROVIDE ALS RESEARCH UPDATES AND GENERAL COPING SKILLS IN DEALING WITH THE DEVASTATION OF AN ALS DIAGNOSIS. THESE PROGRAMS ARE COMMUNICATED BY MAILINGS, SOCIAL MEDIA AND OUR WEBSITE TO OVER 1,200 CONSTITUENTS INCLUDING PATIENTS, FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS AND SUPPORTERS. WE ALSO CONDUCT INSERVICE PROGRAMS TO EDUCATE MEDICAL STAFF ABOUT DEALING WITH ALS PATIENTS AT HOSPICE AND OTHER CARE FACILITIES.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending January 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2023.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.