USA Aniridia Network
Public records show a registered, tax-exempt organization in good standing.
What it says it does
TO PROVIDE EDUCATION, PEER SUPPORT, CONSULTING, AND PROGRAMS/SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ANIRIDIA SYNDROME, A RARE GENETIC DISORDER CAUSED BY A MUTATION IN THE PAX6 GENE. THIS CONDITION RESULTS IN LOW VISION OR BLINDNESS AND IS OFTEN ASSOCIATED WITH COMPLEX, LIFELONG MEDICAL CHALLENGES, INCLUDING CHILDHOOD GLAUCOMA, CATARACTS, RETINAL DISEASE, CORNEAL COMPLICATIONS DUE TO LIMBAL STEM CELL DEFICIENCY (LSCD), METABOLIC DISORDERS, A RARE FORM OF MONOGENIC DIABETES AND NEUROLOGICAL CONDITIONS. BECAUSE ANIRIDIA SYNDROME IS DEGENERATIVE AND HAS NO KNOWN CURE, THE ORGANIZATION IS DEDICATED TO IMPROVING QUALITY OF LIFE BY ADVANCING KNOWLEDGE, SUPPORTING AFFECTED INDIVIDUALS AND FAMILIES, AND CONTRIBUTING TO RESEARCH EFFORTS AIMED AT DEVELOPING TREATMENTS AND, ULTIMATELY, A CURE.
- Income
- $51,240
- Spending
- $120,464
- Reserves
- 12.9 months of spending
- Largest source of income
- donations and private grants, 87%
- Highest pay
- $93,800, director
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 79 out of 100. Higher than 53% of charities in its peer group (health care, under $250k).
Reserves
35 of 35Spendable reserves would cover 12.9 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
0 of 15Spending exceeded income by 135% of income.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $23,906 spent. THE ORGANIZATION PROVIDES EDUCATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY ANIRIDIA SYNDROME. RESOURCES INCLUDE AN INFORMATIONAL WEBSITE, EDUCATIONAL MATERIALS, AND THE BOOK PUBLICATION "ANIRIDIA AND WAGR SYNDROME: A GUIDE FOR PATIENTS AND THEIR FAMILIES." THE ORGANIZATION ALSO FACILITATES CONNECTIONS BETWEEN AFFECTED INDIVIDUALS AND FAMILIES FOR SHARED LEARNING AND SUPPORT. EMOTIONAL SUPPORT AND PEER CONSULTING ARE CENTRAL TO THE MISSION. SERVICES INCLUDE MENTORSHIP AND GUIDANCE FOR PARENTS OF NEWLY DIAGNOSED CHILDREN, AS WELL AS SUPPORT FOR INDIVIDUALS NAVIGATING EDUCATION, EMPLOYMENT, AND INDEPENDENT LIVING WITH VISUAL IMPAIRMENT. VOLUNTEERS PROVIDE CAREER- RELATED MENTORING ACCORDING TO THEIR EXPERTISE IN THE AREA. FINANCIAL SUPPORT ASSISTANCE IS AVAILABLE FOR INDIVIDUALS IN NEED THROUGH THE CHRIS ALBRECHT HOPE (HELPING OTHER PEOPLE) FUND, WHICH SUPPORTS MEDICAL, NON-MEDICAL, AND MENTAL HEALTH-RELATED EXPENSES BASED ON DEMONSTRATED NEED VIA APPLICATION.
- $4,996 spent. THE ORGANIZATION COLLABORATES WITH MEDICAL PROFESSIONALS AND RESEARCHERS TO ADVANCE UNDERSTANDING OF ANIRIDIA SYNDROME. ACTIVITIES INCLUDE PARTICIPATION IN RESEARCH INITIATIVES, SHARING PATIENT-INFORMED DATA, AND TRANSLATING COMPLEX MEDICAL INFORMATION INTO ACCESSIBLE RESOURCES FOR AFFECTED FAMILIES. LEADERSHIP ACTIVELY CONTRIBUTES TO THE FIELD THROUGH SPEAKING ENGAGEMENTS AT MEDICAL AND VISION-RELATED CONFERENCES, AUTHORSHIP, AND DIRECT CONSULTATION WITH FAMILIES AND PROFESSIONALS. THE ORGANIZATION ALSO PROMOTES PUBLIC AWARENESS THROUGH OUTREACH EFFORTS THAT EDUCATE COMMUNITIES ABOUT ANIRIDIA SYNDROME, VISUAL IMPAIRMENT, AND THE IMPORTANCE OF RESEARCH. THESE EFFORTS AIM TO INCREASE PROFESSIONAL ENGAGEMENT, IMPROVE PATIENT OUTCOMES, AND ENCOURAGE BROADER SUPPORT FOR THE VISUALLY IMPAIRED COMMUNITY.
- $25,133 spent. THE ORGANIZATION SUPPORTS AND ADVANCES RESEARCH ON ANIRIDIA SYNDROME THROUGH MULTIPLE INITIATIVES: 1.PROVIDING FUNDING FOR RESEARCH STUDIES, EITHER INDEPENDENTLY OR IN COLLABORATION WITH OTHER VISION-FOCUSED ORGANIZATIONS. 2.PARTNERING WITH MEDICAL PROFESSIONALS AND RESEARCHERS TO FACILITATE CLINICAL TRIALS AND ENCOURAGE PARTICIPATION FROM AFFECTED INDIVIDUALS. 3.MAINTAINING A SECURE, DE-IDENTIFIED PATIENT REGISTRY TO SUPPORT RESEARCH EFFORTS. ACCESS TO REGISTRY DATA IS GRANTED TO QUALIFIED RESEARCHERS UPON REVIEW AND APPROVAL BY MEDICAL AND RESEARCH ADVISORS. RECENT RESEARCH INITIATIVES INCLUDE STUDIES ADDRESSING LIMBAL STEM CELL DEFICIENCY (LSCD), WITH POTENTIAL APPLICATIONS FOR INDIVIDUALS WITH ANIRIDIA SYNDROME. HOWEVER, WE HAVE SEEN THAT IT COULD POTENTIALLY ALSO IN ADDITION HELP OTHERS WITH CORNEAL DAMAGE DUE TO LSCD FROM INJURY (CHEMICAL / THERMAL BURNS TO THE EYES) OR OTHER CORNEAL DISEASE.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since April 2002.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.