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Adult Congenital Heart Association Inc

EIN 04-3447959 · Columbia, MD

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood75 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO EMPOWER THE CONGENITAL HEART DISEASE (CHD) COMMUNITY BY ADVANCING ACCESS TO RESOURCES AND SPECIALIZED CARE THAT IMPROVE PATIENT-CENTERED OUTCOMES.

Income
$1.9 million
Spending
$1.8 million
Spent on programs
68%
Reserves
6.2 months of spending
Largest source of income
donations and private grants, 90%
Employees
16
Volunteers
500
Highest pay
$183,054, president and ceo

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 75 out of 100. Higher than 39% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 6.2 months of spending.

  • Debt

    10 of 20

    It owes 30% of what it owns.

  • Living within its means

    12 of 15

    Income exceeded spending by 1% of income.

  • Income trend

    10 of 15

    Income fell 5% on the year before.

  • Spending floor

    15 of 15

    68% of spending went to programs and raising each dollar of donations cost 17 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    18 of 18 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $856,408 spent. ACCREDITATION, SUPPORT, EDUCATION, AND AWARENESS ACTIVITIES:-MEDICAL CENTER ACCREDITATION PROGRAM: THE ACCREDITATION PROGRAM STARTED IN 2014. AS OF DECEMBER 2025, THERE ARE A TOTAL OF 59 ACCREDITED SITES IN THE US. THERE ARE SEVERAL ADDITIONAL SITES CURRENTLY IN VARIOUS STAGES OF THE ACCREDITATION PROCESS.-PEER SUPPORT PROGRAM: ADULT CONGENITAL HEART ASSOCIATION (ACHA) MANAGES VOLUNTEERS TO PROVIDE ONE-ON-ONE SUPPORT TO ACHD PATIENTS, AND THOSE AFFECTED BY CHD, SEEKING SUCH HELP.(CONTINUED ON SCHEDULE O).- EDUCATIONAL MATERIALS AND WEBINARS: THROUGH ITS WEBSITE, WEBINARS, VIDEOS, AND SOCIAL MEDIA CHANNELS, ACHA PROVIDES 24-HOUR ACCESS TO RELEVANT, UP-TO-DATE INFORMATION AND RESOURCES. FROM THE WEBINARS AND VIDEOS, PATIENTS LEARN MORE ABOUT SPECIFIC CHD CONDITIONS AND DEFECTS, AND THE ISSUES THAT AFFECT THEIR LIVES. LEADING EXPERTS AND ADVOCATES COVER A RANGE OF INTERESTING, DIVERSE, AND TIMELY TOPICS IN PATIENT-FRIENDLY LANGUAGE.- ACHD CLINIC DIRECTORY: ACHA EXPANDED ITS ONLINE LISTING WITH CLOSE TO 400 ACHD CLINICS (INCLUDING SATELLITE CLINICS) IN THE UNITED STATES; EACH LISTING HIGHLIGHTS THE BOARD-CERTIFIED ACHD PROVIDERS, AND THE DIRECTORY CONTINUES TO BE THE ONLY RESOURCE OF ITS KIND AVAILABLE IN THE UNITED STATES. - ACHD PATIENT DIRECTORY: THE ACHA ACHD PATIENT RESOURCE DIRECTORY PROVIDES INFORMATION, RESOURCES, AND TOOLS FOR ACHD PATIENTS AND FAMILIES WHO MIGHT EXPERIENCE BARRIERS TO ACCESSING RECOMMENDED SPECIALIZED CARE. THESE SEARCHABLE RESOURCES ARE PROVIDED TO HELP PATIENTS TAKE AN ACTIVE ROLE IN THEIR CARDIAC CARE. PATIENTS CAN SEARCH FOR TOPICS IN AREAS SUCH AS ACHD/CHD ORGANIZATIONS, OTHER HEALTH ADVOCACY ORGANIZATIONS, ACCESS TO CARE, AND OTHER HEALTH RESOURCES.
  2. $391,769 spent. ADVOCACY, OUTREACH AND RESEARCH ACTIVITIES:ADVOCACY- THE CONGENITAL HEART FUTURES REAUTHORIZATION ACT OF 2024 WAS SIGNED INTO LAW IN NOVEMBER 2024 AND REAUTHORIZED FUNDING OF UP TO $10 MILLION ANNUALLY THROUGH FY 2029. ACHA EDUCATED ELECTED OFFICIALS AND OUR COMMUNITY MEMBERS ABOUT THE LEGISLATION AND OTHER POLICIES THAT IMPROVE HEALTH AND PSYCHOSOCIAL OUTCOMES FOR CHD PATIENTS. THIS INCLUDES ADDRESSING THE ACHD WORKFORCE SHORTAGE BY IDENTIFYING BARRIERS TO TRAINING NEW FELLOWS TO FOLLOW AN ACHD CAREER PATH. (CONTINUED ON SCHEDULE O).RESEARCH - IN 2025, ACHA FUNDED 4 RESEARCH GRANTS, BRINGING THE TOTAL NUMBER OF GRANTS ISSUED TO 24 AND OVER $700,000 SINCE ITS INCEPTION IN 2019.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 1999.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.